by Carson-DeWitt R

Resource Guide for Sickle Cell Disease

RESOURCES

Address: 141 Northwest Point Boulevard Elk Grove Village, IL 60007-1098

Phone: 1-847-434-4000

Internet address: http://www.aap.org

Description of services provided: The American Academy of Pediatrics is a great resource for both parents and health professionals. Included on the site is a detailed policy statement on how best to manage sickle cell disease called "Health Supervision for Children with Sickle Cell Disease."

RESOURCES

Address: 231 E. Baltimore St., Suite 800 Baltimore, MD 21202

Phone: 1-800-421-8453

Internet address: http://www.sicklecelldisease.org

Description of services provided: This site includes information on sickle cell disease, how to cope with its complications, who is affected, and how to join in efforts to research treatments. A chat room allows you to chat online with other people interested in sickle cell disease. Information on conferences, news releases, and a newsletter allow you to stay up-to-date on the latest research efforts.

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